Description
DEBRA is the national charity supporting those directly affected by, and working with, Epidermolysis Bullosa (EB) – a potentially fatal skin condition that causes constant pain due to unstoppable internal and external blistering.
It offers practical, financial, and emotional support to, and advocates for the EB Community; partners with the NHS to provide specialist care and internationally recognised clinical care guidelines; and works with researchers investigating symptom alleviation, effective treatments, and a cure for this debilitating condition.
Location
- Address: 13 Wellington Business Park, Dukes Ride, Crowthorne, Berkshire, RG45 6LS
Who to contact
- Telephone: 01344 771961
- Email: debra@debra.org.uk
- Website: