Description
Founded in 1990, the group provides information and support to families of children with Beckwith-Wiedemann Syndrome (BWS). We work with the Great Ormond Street Hospital Macroglossia Service, and with family networks around the world.
They can:
- Put you in touch with other parents who live nearby
- Help with answers to questions about BWS
- Help with information sources
Location
- Address: The Drum and Monkey, Hazelbury Bryan, Dorset, DT10 2EE
Who to contact
- Telephone: 01258 817573, 07889 211000
- Email: bob@bwssupport.com
- Website: